SUPPORT FOR PARENTS ,CARERS OR ANYBODY WITH SPECIAL NEEDS CHILDREN
 
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"I realize that advocacy does not come naturally for many parents, but
once they become the parent of a child with a disability they are often thrown into a confusing world of less-than-adequate services and fragmented funding. They find themselves thrust into the role of advocate for their child. The power of their collective voice is what makes change
happen. In the end, it is the only thing that does
 
 
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Male patient being examined by doctor

About epilepsy

Epilepsy is very common and can affect anyone
Woman having MRI scan

Diagnosing epilepsy

Most people with seizures will be referred to a hospital specialist
Pills

Treating epilepsy

There are a variety of treatments available
Girl smiling

Living with epilepsy

Epilepsy need not be a debilitating condition
Woman having an ultrasound scan

Pregnancy and epilepsy

A look at the risks and the best way to reduce them
Girl wearing pink shirt

Children and epilepsy

Children with epilepsy can lead full and healthy lives
Autism Spectrum Disorders (ASDs)

Difficulty learning new things:

Autism Spectrum Disorders (ASDs)
Vision Impairment
Fetal Alcohol Syndrome

Difficulty moving around:

bulletCan someone in a wheelchair be an athlete?

Difficulty talking with others:

bulletCan a person who can't speak still tell jokes?

Difficulty learning new things:

bulletIf a person has difficulty learning, will he or she be able to get a job when he or she grows up?

Difficulty using the bathroom, dressing, or eating:

bulletHow do people who are disabled use the bathroom?

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bulletIf a person has difficulty learning, will he or she be able to get a job when he or she grows up?

Difficulty using the bathroom, dressing, or eating:

bulletHow do people who are disabled use the bathroom?

              

Choose your Quest
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

 

http://www.winstonswish.org.uk/

 

 


Autism Unravelled

 

 

 

Special Needs Resources

Special Needs Store
Special products and services for your child.

Special Needs Books
Original book reviews of recommended books.

Author Interviews
Exclusive interviews with the authors you read.

List of Disability Lists
A vast directory of disability support mailing lists & forums.

Interviews with authors of special needs books

Updated resource links for:

Child Allergies
Child Asthma
Child Eczema
Constipation in children
Seizures in children

 

Mind for better mental health

What is a learning disability?
Are there different disabilities?
What causes them?
How is it diagnosed?
What other problems can a learning disability bring?
What is it like to have a learning disability?
What issues might parents face?
How will it affect the family as a whole?
What support can someone expect?
What kind of financial help can we get?
What about schools?
What kind of help can we get with long-term care?
What help can I get to help me lead life to the full?
Standing up for your rights
Useful organisations
Further reading

 

Mind info line 0845 766 0163 open Monday to Friday 9.15am to 5.15pm
 

DAYS OUT FOR SPECIAL NEEDS FAMILIES
Quick links
Days out in the South West
Days out in the South
Days out in Wales
Days out in the West Midlands
Days out in the East Midlands
Days out in the East
Days out in the North West
Days out in the North East
Days out in Scotland
Days out in London


EMAIL US AT OUR SPECIAL

KIDS

deblou06@hotmail.co.uk

 

 

 

WORLD TOP WEBSITES - Top Sites Directory & Websites Ranking
Top 100 Forums<.

LINKS

Special needs
ASSIST-IT: Downloads and Links
A vast selection of links and software designed to help learners with special educational needs get more out of using computers. Includes large pointers, screen magnifying glasses, a clickable keyboard and text-to-speech.

The British Dyslexia Association
The BDA is the national organisation for dyslexia in England, Wales and Northern Ireland. This site contains a database of 130 Local Dyslexia Associations and Dyslexia Support Groups, a definition of dyslexia, advice on recognising the signs, information for parents and educators and an email helpline.

Direct.gov: Special educational needs
Comprehensive information from the government's online portal on how to register and get help for children with special educational needs, and what school's responsibilities are.

Dyslexia Action
An informative site containing a factfile, FAQ section, helpful hints, quick links, articles links and psychological assessment materials that can be purchased through the DI.

Dyslexic.com
A wealth of software which is particularly suitable for use with dyslexic children (and adults) is reviewed on this site which is easy to navigate, carefully designed, and worth looking at before making a purchase.

Equals
Equals is a national organisation for teachers of pupils with severe learning difficulties. The site features links to workshops and details of upcoming conferences, as well as an online discussion forum.

Inclusion
The government's catalogue of resources for special educational needs.

Meldreth Manor
Meldreth Manor divides into three separate sections; a text-based section which introduces the school and its ethos and contains information on teaching and the its use of ITC; a multimedia section, which is similar but uses plug-ins and downloads such as Shockwave; and the switch accessible site, which is designed for those with language impairment and/or visual difficulties.

National Association for Special Educational Needs
Nasen is a huge nationwide organisation dedicated to promoting equal opportunities for learners of all abilities. The homepages contain press releases, journal contributions, its research database and and list of the association's individual departments.

National Parent Partnership Network
The National Parent Partnership Network (NPPN) supports all parent partnership services across England.

Resources for people with Learning Disabilities
Contains resources and links for the learning disabilities community. Features include games, books, tools for people with writing problems, personal essays, and assistance for college students. There is also information about making the best use of software, and LD organisations.

SENTeacher.org
Free resources for special needs teachers, including printed worksheets, software and more links to other materials on the web.

Special Educational Needs and Disability Tribunal: Responsible bodies
Information of interest to LEAs and other regular users of the tribunal, including schools responding to claims of disability discrimination.

 

 

 

 

special needs

Disabilty
      SmallarrowThe definition of disability
      SmallarrowHelp and support
      SmallarrowThe role of schools

Bigarrow Children in care
      SmallarrowAdvice for parents, foster parents and residential carers
      SmallarrowEducation in public care 

Bigarrow Children with medical needs
      SmallarrowAccess to education
      SmallarrowAdvice about support

Bigarrow Special educational needs (SEN)
      SmallarrowThe legal definition of SEN
      SmallarrowSchool transport policy
      SmallarrowHomework for children with special educational needs
      SmallarrowSpecial educational needs complaints 

BigarrowGrowing up, sex and the disabled teenager 
      SmallarrowInformation and support from UK charity Contact a Family
      SmallarrowBooklets for young people, parents and teachers

Bigarrow Support group details
      SmallarrowLinks to the websites of special needs-related organisations
      SmallarrowContact details for special needs-related My Guestbook

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SEN Code of Practice

SEN Code of Practice (PDF version).SEN Code

One Term, Many Definitions: "Special Needs" is an umbrella underneath which a staggering array of diagnoses can be wedged. Children with special needs may have mild learning disabilities or profound mental retardation; food allergies or terminal illness; developmental delays that catch up quickly or remain entrenched; occasional panic attacks or serious psychiatric problems. The designation is useful for getting needed services, setting appropriate goals, and gaining understanding for a child and stressed family.

 

Minuses and Pluses: "Special needs" are commonly defined by what a child can't do -- by milestones unmet, foods banned, activities avoided, experiences denied. These minuses hit families hard, and may make "special needs" seem like a tragic designation. Some parents will always mourn their child's lost potential, and many conditions become more troubling with time. Other families may find that their child's challenges make triumphs sweeter, and that weaknesses are often accompanied by amazing strengths.
Different Concerns: Pick any two families of children with special needs, and they may seem to have little in common. A family dealing with developmental delays will have different concerns than one dealing with chronic illness, which will have different concerns than one dealing with mental illness or learning problems or behavioral challenges. This Parenting Special Needs site devotes sections to the following specific issues: medical, behavioral, developmental, learning, and mental health.
Behavior Issues: Children with behavior issues don't respond to traditional discipline. With diagnoses like ADHD, Fetal Alcohol Spectrum Disorder, Dysfunction of Sensory Integration, and Tourette Syndrome, they require specialized strategies that are tailored to their specific abilities and disabilities. If those strategies are not developed and used, kids with behavior issues throw their families into chaos and are seriously at risk for school problems. Their parents need to be flexible and creative.
Developmental Issues: Developmental disabilities are some of the most devestating for a family to deal with, changing visions of the future and providing immediate difficulties in caring for and educating a child. Diagnoses like autism, Down syndrome and mental retardation often cause children to be removed from the mainstream, and parents must be fierce advocates to make sure their children receive the services, therapy, schooling, and inclusion they need and deserve.
 
Medication
Sun Dec 16, 2007 3:49 am by *mikaylas_mummy*
For those with children of ADHD what type of medication are they on?

Comments: 4
Need some advice
Thu Mar 13, 2008 5:09 am by Joanna
Yesterday riley went to see his physio with his arm and his legs and feet i told her he was still tip-toeing even though he has been wearing special boots to hold his feet down now for 3 months ive been concerend with his walking as half the time he walks like hes drunk and hes forever tripping over himself anyways my sister was with me and took it upon herself to mention that she thinks riley …

[ Full reading ]
Comments: 2
ADHD
Sun Feb 01, 2009 12:57 pm by Debbie Lou
ADHD

What is it?
Attention deficit hyperactivity disorder (ADHD) is the most common childhood-onset behavioural disorder.

Those affected have a greatly reduced ability to maintain attention without being distracted, to control what they're doing or saying (because of impulsivity) and to control the amount of physical activity appropriate to the situation (that is, they're restless and …

[ Full reading ]
Comments: 0

BBC recommends: Department for Education and Skills - Special Educational Needs

Official government information and advice for teachers and parents
www.teachernet.gov.u.../sen/

BBC recommends: Mencap - Understanding Learning Disability

Fantastic resource of education, employment, housing, leisure and financial services for people with learning disabilities
www.mencap.org.uk/

BBC recommends: Makaton

Plenty of information on Makaton for users, carers and parents with advice and workshops in your area
www.makaton.org/index.htm

 

 

Disability Articles
ADHD
Adoption
Advocacy
Allergies
Autism
Cerebral Palsy
Feeding
Learning Disabilities
OCD
Parenting
Prematurity
Sensory Integration
Speech
Vision

Discussion

autism.west midlands

autism.westmidlands provides specialist services to people with autistic spectrum disorders and their families within the West Midlands region.


Barnardo's

Barnardo's works with vulnerable children and young people in the UK


British Assocaition for Early Childhood Education

The British Association for Early Childhood Education, founded in 1923, is known as Early Education. It is the leading national voluntary organisation for early years practitioners and parents with members and branches in England, Northern Ireland, Scotland, and Wales.


British Dyslexia Association

The BDA is the voice of dyslexic people. Our vision is that of a dyslexia friendly society that enables dyslexic people to reach their potential.


British Educational Communications and Technology Agency

Becta is the Government's key partner in the strategic development and delivery of its information and communications technology (ICT) and e-learning strategy for the schools and the learning and skills sectors.


British Institute of Learning Disabilities (BILD)

BILD is committed to improving the quality of life for the 1.2 million people in the UK with a learning disability.

 

 

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Siblings of Kids with Special Needs

 

How does growing up in an exceptional family affect siblings of kids with special health or developmental needs?

Siblings of children with special needs have special needs themselves.  Their sister or brother with special needs will get a bigger share of attention.  While having a special needs sib presents challenges, it also comes with opportunities.  When parents tune in to each child’s individual needs, they can help ease the difficulties.

What are some parenting tips for our family?

You can help your kids better understand what having a sibling with special needs means to your family, and you can also help your kids figure out constructive and appropriate ways to express their feelings and get their needs met.

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Rebound Therapy: for use by everyone who is involved with rebound therapy and special needs trampolining

Whizzkidz: a charity supporting disabled children's mobility

Action for Leisure:
promoting play and leisure for disabled children and adults   

Kidsactive:
Working towards a world in which all children's right to play and their right to be included in their local play communities are recognised and held to be of equal and inseparable value

PHAB:
clubs for disabled and non-disabled people to socialise together

National association of toy and leisure libraries


Disability Challengers:
play and leisure opportunities for young people with any special needs

CBeebies Special Educational Needs site: fun, games and information for parents and children

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Sunderland Carers' Centre

Nigel Clare Network Trust:
practical support for families where their child's life is limited or threatened

Bridge:
a Sunderland based training and support organisation for women

Gingerbread:
support for lone parents

E-Parents:
working to improve the lives of parents and families by campaigning for a more family friendly society

Princess Royal Trust for Carers:
a range of information for carers as well as a discussion area where carers can chat to others

Face2Face a befriending service for parents whose children have been recently diagnosed as having a disability:

Life knowledge park: a local website offering support to people with genetic conditions, and their families

Carers UK: Carers UK is the voice of carers.

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Debbie Eslor West's Facebook profile
The Echoes Foundation

 

Are you or do you know a parent / carer of a special / additional needs child?

Do you want to talk to somebody who is going through or been through the same experience?

Do you want a talk to somebody who can empathise, understand and know what its like?

 

Do you live in the Hull area then get in touch with The Echoes Foundation

 

1st Floor 728-730 Hessle Road,
Hull,
East Yorkshire
HU4 6JA

Telephone: 01482 505589

 

http://www.echoesfoundation.co.uk 

 

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Latest topics
» Project Lifesaver
Fri Jun 05, 2009 12:33 pm by Debbie Lou

» Hello Everyone
Fri Jun 05, 2009 12:31 pm by Debbie Lou

» If I'm lucky.......
Thu Jun 04, 2009 7:44 pm by saved_by_grace

» Medication
Sun May 31, 2009 11:53 pm by saved_by_grace

» Need some advice
Sun May 31, 2009 11:42 pm by saved_by_grace

» Just Wondering.......
Sun May 31, 2009 8:54 pm by saved_by_grace

» autism unnoticed
Sun May 31, 2009 8:25 pm by saved_by_grace

» Welcome along Donna
Sat Apr 04, 2009 2:54 am by Debbie Lou

» Welcome along Angie
Thu Mar 19, 2009 7:49 am by Debbie Lou

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related organisations and charities

ACT
The only UK organisation working to improve care and services for all children in the UK with life threatening or terminal conditions and their families. www.act.org.uk

ASBAH
A national organisation providing information and advice about spina bifida and hydrocephalus to individuals, families and carers. www.asbah.org.uk

All Go Here
A directory of UK hotels and other hospitality related services which are disability friendly. www.allgohere.com

Children Today
Provides grants for vital life changing equipment for children and young people with sickness or disabilities across the UK. www.children-today.org.uk

Climb
A national organisation working on behalf of children, young people and families affected by metabolic disease. www.climb.org.uk

 

http://health.pppst.com/IEP.html

Parenting Journals - Promoting happy and healthy families. Tips, articles and resources for parents and children.

 

Join our new discussion forum Special-Needs-Families

Click here to join special-needs-families

Click to join special-needs-families

                                      

 

 

                                     http://www.specialkidsintheuk.org/
 
 
 
 

Post Pals - Putting a Smile on Childrens Faces

 

SPECIAL NEEDS EDUCATION ISSUES AND ADVICE

Download the leaflet 'SEN: a guide for parents and carers' (opens new window)

 

SEN advice for parents and carers (opens new window)

 

Special educational needs: a step-by-step approach

 

Support for special educational needs: parent partnership services and other organisations

 
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Special Needs - LINKS
Asthma - The National Asthma Campaign

Ataxia (Friedreich's Ataxia and similar conditions)

Autism - The National Autistic Society  

Brittle Bone Society

Cerebral Palsy - Scope

Cleft lip and palate - CLAPA

Cystic Fibrosis Trust

Deaf-blind and rubella disabled - SENSE

Deafsign - a sign language resource

Diabetes UK

Dyslexia - the British Dyslexia Association

Down's Syndrome Association  

Haemophilia Society

Hearing problems - National Deaf Children's Society

Heart problems - Children's Heart Foundation

Kidney problems - the National Kidney Federation

Learning disabilities - MENCAP  

Leukaemia Research Fund

Metabolic diseases - Climb Muscular Dystrophy Campaign

Speech problems - AFASIC

Spina Bifida - ASBAH

Vision problems - RNIB

Post Pals - Putting a Smile on Childrens Faces

AYME
 
Cancer Research UK
 
Carers
Children First
.
CLIC Sargent
 
 
Dial a Dream
 
Locks of Love
 
Make a Wish Foundation
 
Radio Lollipop
.
Share the Love
.
Sleepy Dust
 
Squirrel Tales
Starlight Children's Foundation
 
Teenage Cancer Trust
.
The National Kidney Research Fun
.
 

BBC Children in Need

Princes Trust

GWT Media - Web Design, Development and Hosting

     

paul

Total Blog DirectoryParenting Blog Directory

 


Visit the links below on special needs kids for help with

CARER'S ASSESSMENT
CLICK HERE


DIRECT PAYMENTS
CLICK HERE


DISABILITY LIVING ALLOWANCE
CLICK HERE


 

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