OUR SPECIAL KIDS

SUPPORT FOR PARENTS ,CARERS OR ANYBODY WITH SPECIAL NEEDS CHILDREN

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"I realize that advocacy does not come naturally for many parents, but

once they become the parent of a child with a disability they are often thrown into a confusing world of less-than-adequate services and fragmented funding. They find themselves thrust into the role of advocate for their child. The power of their collective voice is what makes change

happen. In the end, it is the only thing that does

Once you have looked round our site please remember to sign our guest book xxx

PLEASE VISIT OUR FORUM

About epilepsy

Epilepsy is very common and can affect anyone

Diagnosing epilepsy

Most people with seizures will be referred to a hospital specialist

Treating epilepsy

There are a variety of treatments available

Living with epilepsy

Epilepsy need not be a debilitating condition

Pregnancy and epilepsy

A look at the risks and the best way to reduce them

Children and epilepsy

Children with epilepsy can lead full and healthy lives

Autism Spectrum Disorders (ASDs)

Difficulty learning new things:

Autism Spectrum Disorders (ASDs)

I've heard on the news about kids having something called "autism spectrum disorder (ASD)." What is it and what do I need to know about it?

Vision Impairment

Can kids who are blind read books?

Fetal Alcohol Syndrome

What is fetal alcohol syndrome and why is it important for me to know about it?
Difficulty moving around:
Can someone in a wheelchair be an athlete?
Difficulty talking with others:
Can a person who can't speak still tell jokes?
Difficulty learning new things:
If a person has difficulty learning, will he or she be able to get a job when he or she grows up?
Difficulty using the bathroom, dressing, or eating:
How do people who are disabled use the bathroom?
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If a person has difficulty learning, will he or she be able to get a job when he or she grows up?

Difficulty using the bathroom, dressing, or eating:

How do people who are disabled use the bathroom?

http://www.winstonswish.org.uk/

Autism Unravelled

NAS

Autism London

Special Needs Resources

Special Needs Store
Special products and services for your child.

Special Needs Books
Original book reviews of recommended books.

Author Interviews
Exclusive interviews with the authors you read.

List of Disability Lists
A vast directory of disability support mailing lists & forums.

Updated resource links for:

Child Allergies
Child Asthma
Child Eczema
Constipation in children
Seizures in children

What is a learning disability?
Are there different disabilities?
What causes them?
How is it diagnosed?
What other problems can a learning disability bring?
What is it like to have a learning disability?
What issues might parents face?
How will it affect the family as a whole?
What support can someone expect?
What kind of financial help can we get?
What about schools?
What kind of help can we get with long-term care?
What help can I get to help me lead life to the full?
Standing up for your rights
Useful organisations
Further reading

Mind info line 0845 766 0163 open Monday to Friday 9.15am to 5.15pm

DAYS OUT FOR SPECIAL NEEDS FAMILIES

Quick links

Days out in the South West
Days out in the South
Days out in Wales
Days out in the West Midlands
Days out in the East Midlands
Days out in the East
Days out in the North West
Days out in the North East
Days out in Scotland
Days out in London

EMAIL US AT OUR SPECIAL

KIDS

deblou06@hotmail.co.uk

Top 100 Forums<.

LINKS

Special needs

ASSIST-IT: Downloads and Links
A vast selection of links and software designed to help learners with special educational needs get more out of using computers. Includes large pointers, screen magnifying glasses, a clickable keyboard and text-to-speech.

The British Dyslexia Association
The BDA is the national organisation for dyslexia in England, Wales and Northern Ireland. This site contains a database of 130 Local Dyslexia Associations and Dyslexia Support Groups, a definition of dyslexia, advice on recognising the signs, information for parents and educators and an email helpline.

Direct.gov: Special educational needs
Comprehensive information from the government's online portal on how to register and get help for children with special educational needs, and what school's responsibilities are.

Dyslexia Action
An informative site containing a factfile, FAQ section, helpful hints, quick links, articles links and psychological assessment materials that can be purchased through the DI.

Dyslexic.com
A wealth of software which is particularly suitable for use with dyslexic children (and adults) is reviewed on this site which is easy to navigate, carefully designed, and worth looking at before making a purchase.

Equals
Equals is a national organisation for teachers of pupils with severe learning difficulties. The site features links to workshops and details of upcoming conferences, as well as an online discussion forum.

Inclusion
The government's catalogue of resources for special educational needs.

Meldreth Manor
Meldreth Manor divides into three separate sections; a text-based section which introduces the school and its ethos and contains information on teaching and the its use of ITC; a multimedia section, which is similar but uses plug-ins and downloads such as Shockwave; and the switch accessible site, which is designed for those with language impairment and/or visual difficulties.

National Association for Special Educational Needs
Nasen is a huge nationwide organisation dedicated to promoting equal opportunities for learners of all abilities. The homepages contain press releases, journal contributions, its research database and and list of the association's individual departments.

National Parent Partnership Network
The National Parent Partnership Network (NPPN) supports all parent partnership services across England.

Resources for people with Learning Disabilities
Contains resources and links for the learning disabilities community. Features include games, books, tools for people with writing problems, personal essays, and assistance for college students. There is also information about making the best use of software, and LD organisations.

SENTeacher.org
Free resources for special needs teachers, including printed worksheets, software and more links to other materials on the web.

Special Educational Needs and Disability Tribunal: Responsible bodies
Information of interest to LEAs and other regular users of the tribunal, including schools responding to claims of disability discrimination.

special needs

Disabilty
      Smallarrow The definition of disability
      Help and support
      The role of schools

Bigarrow Children in care
      Advice for parents, foster parents and residential carers
      Education in public care

Children with medical needs
     Access to education
    Smallarrow Advice about support

Special educational needs (SEN)
     The legal definition of SEN
     School transport policy
     Homework for children with special educational needs
     Special educational needs complaints

Bigarrow Growing up, sex and the disabled teenager
Smallarrow Information and support from UK charity Contact a Family
Booklets for young people, parents and teachers

Bigarrow Support group details
Smallarrow Links to the websites of special needs-related organisations
Contact details for special needs-related My Guestbook

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BRAIN ANATOMY

About Brain Injury: A Guide to Brain Anatomy
Anatomy of the Functional Areas of the Brain
Links to Sites Related to Brain Anatomy
The Whole Brain Anatomy

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THE

SEN Code of Practice

SEN Code

One Term, Many Definitions: "Special Needs" is an umbrella underneath which a staggering array of diagnoses can be wedged. Children with special needs may have mild learning disabilities or profound mental retardation; food allergies or terminal illness; developmental delays that catch up quickly or remain entrenched; occasional panic attacks or serious psychiatric problems. The designation is useful for getting needed services, setting appropriate goals, and gaining understanding for a child and stressed family.

Minuses and Pluses: "Special needs" are commonly defined by what a child can't do -- by milestones unmet, foods banned, activities avoided, experiences denied. These minuses hit families hard, and may make "special needs" seem like a tragic designation. Some parents will always mourn their child's lost potential, and many conditions become more troubling with time. Other families may find that their child's challenges make triumphs sweeter, and that weaknesses are often accompanied by amazing strengths.

Different Concerns: Pick any two families of children with special needs, and they may seem to have little in common. A family dealing with developmental delays will have different concerns than one dealing with chronic illness, which will have different concerns than one dealing with mental illness or learning problems or behavioral challenges. This Parenting Special Needs site devotes sections to the following specific issues: medical, behavioral, developmental, learning, and mental health.

Behavior Issues: Children with behavior issues don't respond to traditional discipline. With diagnoses like ADHD, Fetal Alcohol Spectrum Disorder, Dysfunction of Sensory Integration, and Tourette Syndrome, they require specialized strategies that are tailored to their specific abilities and disabilities. If those strategies are not developed and used, kids with behavior issues throw their families into chaos and are seriously at risk for school problems. Their parents need to be flexible and creative.

Developmental Issues: Developmental disabilities are some of the most devestating for a family to deal with, changing visions of the future and providing immediate difficulties in caring for and educating a child. Diagnoses like autism, Down syndrome and mental retardation often cause children to be removed from the mainstream, and parents must be fierce advocates to make sure their children receive the services, therapy, schooling, and inclusion they need and deserve.

Medication

Sun Dec 16, 2007 10:49 am by *mikaylas_mummy*

For those with children of ADHD what type of medication are they on?

Comments: 4

Need some advice

Thu Mar 13, 2008 11:09 am by Joanna

Yesterday riley went to see his physio with his arm and his legs and feet i told her he was still tip-toeing even though he has been wearing special boots to hold his feet down now for 3 months ive been concerend with his walking as half the time he walks like hes drunk and hes forever tripping over himself anyways my sister was with me and took it upon herself to mention that she thinks riley may...

[ Full reading ]

Comments: 2

ADHD

Sun Feb 01, 2009 7:57 pm by Debbie Lou

ADHD

What is it?
Attention deficit hyperactivity disorder (ADHD) is the most common childhood-onset behavioural disorder.

Those affected have a greatly reduced ability to maintain attention without being distracted, to control what they're doing or saying (because of impulsivity) and to control the amount of physical activity appropriate to the situation (that...

[ Full reading ]

Comments: 0

BBC recommends: Department for Education and Skills - Special Educational Needs

Official government information and advice for teachers and parents
www.teachernet.gov.u.../sen/

BBC recommends: Mencap - Understanding Learning Disability

Fantastic resource of education, employment, housing, leisure and financial services for people with learning disabilities
www.mencap.org.uk/

BBC recommends: Makaton

Plenty of information on Makaton for users, carers and parents with advice and workshops in your area
www.makaton.org/index.htm

Disability Articles
ADHD
Adoption
Advocacy
Allergies
Autism
Cerebral Palsy
Feeding
Learning Disabilities
OCD
Parenting
Prematurity
Sensory Integration
Speech
Vision

Discussion

Site Monitor

autism.west midlands

autism.westmidlands provides specialist services to people with autistic spectrum disorders and their families within the West Midlands region.

Barnardo's

Barnardo's works with vulnerable children and young people in the UK

British Assocaition for Early Childhood Education

The British Association for Early Childhood Education, founded in 1923, is known as Early Education. It is the leading national voluntary organisation for early years practitioners and parents with members and branches in England, Northern Ireland, Scotland, and Wales.

British Dyslexia Association

The BDA is the voice of dyslexic people. Our vision is that of a dyslexia friendly society that enables dyslexic people to reach their potential.

British Educational Communications and Technology Agency

Becta is the Government's key partner in the strategic development and delivery of its information and communications technology (ICT) and e-learning strategy for the schools and the learning and skills sectors.

British Institute of Learning Disabilities (BILD)

BILD is committed to improving the quality of life for the 1.2 million people in the UK with a learning disability.

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Siblings of Kids with Special Needs

How does growing up in an exceptional family affect siblings of kids with special health or developmental needs?

Siblings of children with special needs have special needs themselves. Their sister or brother with special needs will get a bigger share of attention. While having a special needs sib presents challenges, it also comes with opportunities. When parents tune in to each child’s individual needs, they can help ease the difficulties.

Quick tips for parents of kids with special needs taken from the book Siblings Without Rivalry
Developmental considerations, tips, and warning signs
Being the brother or sister of a kid with special needs has its upside, too! Siblings have opportunities to develop wonderful traits like insight, tolerance, and loyalty.

What are some parenting tips for our family?

You can help your kids better understand what having a sibling with special needs means to your family, and you can also help your kids figure out constructive and appropriate ways to express their feelings and get their needs met.

First, get the basics on sibling rivalry.
When Special Needs Spark Sibling Rivalry

Rebound Therapy: for use by everyone who is involved with rebound therapy and special needs trampolining

Whizzkidz: a charity supporting disabled children's mobility

Action for Leisure: promoting play and leisure for disabled children and adults

Kidsactive: Working towards a world in which all children's right to play and their right to be included in their local play communities are recognised and held to be of equal and inseparable value

PHAB: clubs for disabled and non-disabled people to socialise together

National association of toy and leisure libraries

Disability Challengers: play and leisure opportunities for young people with any special needs

CBeebies Special Educational Needs site: fun, games and information for parents and children

Sunderland Carers' Centre

Nigel Clare Network Trust: practical support for families where their child's life is limited or threatened

Bridge: a Sunderland based training and support organisation for women

Gingerbread: support for lone parents

E-Parents: working to improve the lives of parents and families by campaigning for a more family friendly society

Princess Royal Trust for Carers: a range of information for carers as well as a discussion area where carers can chat to others

Face2Face a befriending service for parents whose children have been recently diagnosed as having a disability:

Life knowledge park: a local website offering support to people with genetic conditions, and their families

Carers UK: Carers UK is the voice of carers.

The Echoes Foundation

Are you or do you know a parent / carer of a special / additional needs child?

Do you want to talk to somebody who is going through or been through the same experience?

Do you want a talk to somebody who can empathise, understand and know what its like?

Do you live in the Hull area then get in touch with The Echoes Foundation